Monday was kind of cold but it was great to be outside. Robby and I went on our regular cruise around town and back. On our way back we stopped by my aunts to see the castle that my cousin’s kid made, he is so creative and such a perfectionist I knew it would look awesome. I wanted to go to Ross to get some thermal shirts and some tank dresses for our trip but it was way too cold and I forgot to have Karen put some cash in Robby’s wallet. I keep a wallet in the pocket of Robby’s vest so when I’m out and about I can have people get money out so they don’t have to go into my backpack and get my wallet. It works out great because I can just have Robby jump up on the counter and all they need to do is unzip the side of his vest and there is.
Tuesday I didn’t plan on getting up anyway because it was cold and rainy. Personal care took a lot longer than I thought. Both Heather and Cassie came over to visit, that was nice. The rest of the evening I just relaxed, watched some TV and movie. My uncle came over with a bowl of chili and it was really good, he keeps trying different recipes to find just the right one. This one had tomato soup? Never heard of that but it was really good. He also had red and black beans in it, garlic of course, hamburger and chorizo, a green chili and a little bell pepper. I think he’s pretty close to finding the perfect chili.
You know what you say but you don't know what they hear…
Wednesday was another miserable day of personal care, I don’t know what’s wrong with me but it’s getting very frustrating. I didn’t get to get out for a couple of hours with Robby and the weather was beautiful so that’s always good. We went on our regular cruise and ended up at Ross. I went there to look for thermals and tank dresses for our road trip, I have no idea what the weather is going to be like. I didn’t find anything but I’m sure I have enough stuff to where, I just need to look in the other closet to see what I forgot I have.
Thursday was yet another miserable day of personal care, it has to be over. I ended up staying in bed again but I think we got everything taken care of and I got a nice long hot bath. I’m going to try to get up tomorrow after my massage… wish me luck!
Friday I didn’t get to get up but I have a nice relaxing day in bed. I don’t really watch the movies I get from Netflix so I canceled my subscription except for the streaming, I don’t really watch that either but it’s a nice option. We played cribbage and Claudia was my partner… we killed. I started out with $4 and ended up with $10, a pretty good night? My uncle brought over a huge bowl of popcorn, he makes the best popcorn. We had some cheese and crackers but didn’t break them out, I was really looking forward to that but I think I’m the only one that wanted some.
Saturday was a really nice day. I wanted to get up early enough to take Robby for a nice long cruise before we left for San Jose but it was too cold and wet. We were invited to my old neighbors… no pun intended… 99th birthday party. I haven’t seen a lot of these people since I moved away almost 4 years ago and it was really nice to see everyone. I thought it would be a little warmer in San Jose but it really wasn’t. By the time we got back I was really tired and fell asleep almost as soon as I got into bed.
Sunday turned out to be a really long day for personal care but I got to take a nice long hot bath, go back to bed, relax and watch some TV. I ordered a new battery for my portable lift because the old one wouldn’t charge anymore. The guy wouldn’t give me a price and call me on the way and said he was bringing me his to use for the trip and then he would bring me a new one, I’m kind of annoyed because he took my old one with him. I think he’s just going to replace something in my old one and charge me for a new one, he seems to be always really shady and I think charges way too much… we will see. I told Karen I wish we would have made some little mark on my other battery, the one that died, so I can see if he just brings me back that one. Why does he need to take the old battery if it’s supposedly not working?? I don’t know if I’m just getting suspicious in my old age, I feel like I’ve just been taken advantage of a lot.
Monday, February 13, 2012
Monday, February 6, 2012
What a great week…
Monday was a busy and cold day. I had an appointment with Andrei from Dominican rehab and Jack and Eric from ATG rehab at Dominican rehab. When we left here the sun was shining and it was nice and warm. We ordered the new laterals for my chair. I was going to cruise Robby back but it was just too cold, the sun was gone and the clouds were out so Teresa gave us a ride back. I wanted to take Robby for a nice long cruise but the sun never came back out and it was too cold, luckily Otis and his 3 dogs were here so I just let Robby run around the yard with them for a while. After he rested I put on his vest and we practiced ignoring the dogs. Robby has been paying way too much attention to dogs in public so we are working on that, she did really well. Robby and I cruised up to Dr. Owens office and I got my Depo-Provera and my flu shot. I almost didn’t go because it was cold and it looked like it was going to rain but we did it anyway and I’m glad I did even though by the time I got home I was freezing.
Tuesday was a really great day. I got up and met with Phil, the guy who is working on my back porch. He put up some dragonfly string lights that I had in my closet. We also talked about putting up some more lights, a heating lamp and he’s going to hang some pictures in my bedroom. Everything is definitely going to be done by the time Tom and Kelly get here next summer, I can’t wait for them to see it and I can’t wait to have our 1st barbecue out there. I took Robby for a cruise through the lagoon, to the end of the wharf and back and through the boardwalk and back. I saw our friend Jimbo with the guitar and the maracas on his feet, he is always so nice and friendly. They came back and went to bed and had a killer salad that Teresa made with spinach, bacon, hard-boiled eggs and bacon. I’ve been trying to eat a little bowl of salad every day. Teresa and Jess have one every day so it’s easier for her to bring me a little every day then to make a big salad just for me, most of it goes to waste. The last couple of nights my mom has even getting them and let them. Tomorrow she’s going to make a wheat Berry salad that my cousin Kelly had in her blog, it was so good. I started watching a Joan and Melissa Rivers reality show, it’s pretty funny.
Wednesday was a nice relaxing day, I’m glad I didn’t get up because it looked really cold outside. After we did my personal care I got a nice long hot bath and went back to bed. Visiting nurse was coming and there wasn’t going to be time to get out and cruise around with Robby anyway. Each time the visiting nurse comes we figure out some kind of new foot apparatus to put on my feet because everything seems to make red marks in one place or another, I think we decided I should go back to hangar prosthetics and see if they can come up with something. We found a way to prop me up a little bit on my side to give my bottom a rest, hopefully that’s one problem I won’t have to deal with anymore.
Just been to the gym. They've got a new machine in. Could only use it for half an hour, as I started to feel sick. It's great though. It provides me with everything I need - KitKats, Mars Bars, Snickers, Potato Crisps, the lot.."
Thursday was such a great day. The visiting nurse came by in the morning and everything looked great, all the redness was almost gone and now we know what we need to do. I got up and took Robby for a nice long cruise through the lagoon, to the end of the wharf and back, through the boardwalk, down the river, through town and back. My chair seemed like it was struggling a little bit going up hills and it sounds louder so I came home and called ATG rehab to check on the motors for my chair. Teresa came by and made one of my cousin Kelly’s salads, it had wheat berries, arugula, beets and I don’t remember what else but it was AWESOME, I just love having salads every day. Cassie came over and we watched Jersey shore.
Friday as usual was a great day even though I didn’t get up. I got my hour and a half massage, did my personal care and took a nice long hot bath as soon as the morning caregiver left the evening caregiver came in but we got a lot done and I don’t have to really do anything tomorrow except get up and go play with the puppy, I hope it’s nice tomorrow. It seemed like nobody wanted to play cribbage but that’s okay because I really didn’t get any time to myself today anyway. I think I’ll watch a movie and just relax. My uncle came over about 6:45 PM to see if anybody was going to play but he had just gotten home from working out on the hill and he was covered with fiberglass from the installation, he looked really tired anyway. He is helping my cousin, Rich, put in a new bathroom and they have been working really hard every day.
Saturday was such an awesome day. I was up and out of here by 11:30 AM and it just kept getting warmer. The wharf and the boardwalk were packed with people and by the time I got to the river it was so hot I had to turn around and come back and take off my braces in my thick boots. I want to go back out again but it was already 2 PM and time for my afternoon caregiver so I just went to bed, ate dinner, relaxed and watched TV. I hope Sunday is just as nice so I can get an earlier start and enjoy the day.
Sunday ended up being a long and frustrating day. It was supposed to be really nice outside so I wanted to get everything done and get up, it was such a nice day yesterday but I feel I got cheated because I wasn’t out very long. Today would have been perfect because everybody is at home watching the Super Bowl… everybody but me. My afternoon caregiver texted me 1st thing in the morning and asked me if I was going to watch the Super Bowl, she was supposed to come in at 2 PM. This told me one of 2 things, one she thought maybe she was going to come here and watch it, I don’t do sports, or 2 that she didn’t want to come in at all because she wanted to stay home and watched again so I told her to just stay home. I was supposed to get up and go to the movies with Heather but as you can guess that did not happen. I got to rest him and watch movies so it’s all worth it, I might even order a pizza later… I can at least eat Super Bowl food if I’m not going to watch the Super Bowl?
Tuesday was a really great day. I got up and met with Phil, the guy who is working on my back porch. He put up some dragonfly string lights that I had in my closet. We also talked about putting up some more lights, a heating lamp and he’s going to hang some pictures in my bedroom. Everything is definitely going to be done by the time Tom and Kelly get here next summer, I can’t wait for them to see it and I can’t wait to have our 1st barbecue out there. I took Robby for a cruise through the lagoon, to the end of the wharf and back and through the boardwalk and back. I saw our friend Jimbo with the guitar and the maracas on his feet, he is always so nice and friendly. They came back and went to bed and had a killer salad that Teresa made with spinach, bacon, hard-boiled eggs and bacon. I’ve been trying to eat a little bowl of salad every day. Teresa and Jess have one every day so it’s easier for her to bring me a little every day then to make a big salad just for me, most of it goes to waste. The last couple of nights my mom has even getting them and let them. Tomorrow she’s going to make a wheat Berry salad that my cousin Kelly had in her blog, it was so good. I started watching a Joan and Melissa Rivers reality show, it’s pretty funny.
Wednesday was a nice relaxing day, I’m glad I didn’t get up because it looked really cold outside. After we did my personal care I got a nice long hot bath and went back to bed. Visiting nurse was coming and there wasn’t going to be time to get out and cruise around with Robby anyway. Each time the visiting nurse comes we figure out some kind of new foot apparatus to put on my feet because everything seems to make red marks in one place or another, I think we decided I should go back to hangar prosthetics and see if they can come up with something. We found a way to prop me up a little bit on my side to give my bottom a rest, hopefully that’s one problem I won’t have to deal with anymore.
Just been to the gym. They've got a new machine in. Could only use it for half an hour, as I started to feel sick. It's great though. It provides me with everything I need - KitKats, Mars Bars, Snickers, Potato Crisps, the lot.."
Thursday was such a great day. The visiting nurse came by in the morning and everything looked great, all the redness was almost gone and now we know what we need to do. I got up and took Robby for a nice long cruise through the lagoon, to the end of the wharf and back, through the boardwalk, down the river, through town and back. My chair seemed like it was struggling a little bit going up hills and it sounds louder so I came home and called ATG rehab to check on the motors for my chair. Teresa came by and made one of my cousin Kelly’s salads, it had wheat berries, arugula, beets and I don’t remember what else but it was AWESOME, I just love having salads every day. Cassie came over and we watched Jersey shore.
Friday as usual was a great day even though I didn’t get up. I got my hour and a half massage, did my personal care and took a nice long hot bath as soon as the morning caregiver left the evening caregiver came in but we got a lot done and I don’t have to really do anything tomorrow except get up and go play with the puppy, I hope it’s nice tomorrow. It seemed like nobody wanted to play cribbage but that’s okay because I really didn’t get any time to myself today anyway. I think I’ll watch a movie and just relax. My uncle came over about 6:45 PM to see if anybody was going to play but he had just gotten home from working out on the hill and he was covered with fiberglass from the installation, he looked really tired anyway. He is helping my cousin, Rich, put in a new bathroom and they have been working really hard every day.
Saturday was such an awesome day. I was up and out of here by 11:30 AM and it just kept getting warmer. The wharf and the boardwalk were packed with people and by the time I got to the river it was so hot I had to turn around and come back and take off my braces in my thick boots. I want to go back out again but it was already 2 PM and time for my afternoon caregiver so I just went to bed, ate dinner, relaxed and watched TV. I hope Sunday is just as nice so I can get an earlier start and enjoy the day.
Sunday ended up being a long and frustrating day. It was supposed to be really nice outside so I wanted to get everything done and get up, it was such a nice day yesterday but I feel I got cheated because I wasn’t out very long. Today would have been perfect because everybody is at home watching the Super Bowl… everybody but me. My afternoon caregiver texted me 1st thing in the morning and asked me if I was going to watch the Super Bowl, she was supposed to come in at 2 PM. This told me one of 2 things, one she thought maybe she was going to come here and watch it, I don’t do sports, or 2 that she didn’t want to come in at all because she wanted to stay home and watched again so I told her to just stay home. I was supposed to get up and go to the movies with Heather but as you can guess that did not happen. I got to rest him and watch movies so it’s all worth it, I might even order a pizza later… I can at least eat Super Bowl food if I’m not going to watch the Super Bowl?
Sunday, January 29, 2012
Back in the saddle again…
Monday was AWESOME. I was up and out of here cruising around with my puppy by 11 o’clock. It wasn’t as cold as it has been for as I thought it would be. The sun was in and out as we cruised through the lagoon, to the end of the wharf back and to the boardwalk and back. The last time I cruise through the wharf I met a guy named Jimbo. He sits on the bench by one of the restaurants with a guitar and some sort of simple things or maracas on the end of his shoes. He stopped me one day and we had a nice conversation. I’m still a little scared to follow the path down the river because I’m afraid of being too far away from home if the motor goes out in my wheelchair. There was not a lot of people around, I love that about the weekdays. I leaned back on the boardwalk for a while and just look for objects in the clouds. I wish I was able to take a picture because it was so beautiful. I headed back home because it was sprinkling but as soon as I got home the sun was out and shining. Heather came by to cook and I decided to take Robby for another short cruise through the lagoon. On the way back I found some really cool branches with different colored moss. Whenever I see sticks with moss on them I just have to stop and have Robby pick them up and put them in my lap, he hates the way that the moss feels in his mouth but he is a trooper. I bring them home for my air plant terrariums, I know I have way more sticks then I need but it’s hard to pass them up. I came home and went to bed and listen to more of my audio book, watched intervention and then slept really good.
"Dogs are the most amazing creatures; they give us unconditional love. For me they are the role model for being alive." quote by~ Gilda Radner
Tuesday was a lot warmer outside than it has been. Today was my day for a manicure/pedicure. I took Robby for cruise through the lagoon and down to the end of the wharf and back before my appointment, the place where I get my nails done is up the Hill from the wharf. I think the funniest part is picking out the nail polish, we do a lot of experiments on me. Today I noticed on their fingernail color wheel that Samantha did one with a lime green color with a black spider on it, I was going to have that done on Halloween… I don’t remember why I didn’t. We already found a really cool one, actually 2, for next month. After my appointment Robby and I cruised down through the boardwalk and back home. Karen was still cleaning, I’m so glad she agreed to do it because she does such a great job. Teresa came and brought me an awesome salad, I want to eat more salads with my meals… I love salads.
Being stupid is not a reason to cry. One cries because one is sad. For example, I cry because others are stupid, and it makes me sad. -Sheldon Cooper
Wednesday I ended up staying in bed but I kind of thought that what happened so I wasn’t too disappointed although it was gorgeous outside. Of coarse personal-care took a long time but as usual I got a nice long hot bath, not as hot as I would have liked to have been… I don’t know what’s wrong with my water heater. Kathy, the wound care visiting nurse, came to see how I was doing. The pressure sores on my butt are totally healed but now I have one on the back of my left ankle and a huge blister on the back of my right ankle, it’s always something. She looked at my night braces and my day braces and did some alterations to my night races, that’s what she thinks the problem is. She is the one everybody raves about when it comes to wound care. This is the 1st time that she has seen my new mattress and she loves it as much as I do, again I’m sorry Michael that I doubted you. I told her it would be great if I could get these all healed up before my trip in February, she said it is possible. I got an e-mail from James, he is the guy at CCI who trained Robby… his 1st graduate. He gave me some really great tips on how to deal with Robby’s new barking problem and dog obsession. James is awesome!
Thursday was such a beautiful day. I got up and out of here and the weather was perfect. I got to the wharf and I just couldn’t stop looking at the view, Robby kept looking at me like he was saying “let’s go, let’s go”. I got to the end of the wharf and you could see the lighthouse across the water but you could just barely see cowell Beach. The surfers were riding the waves all away from the lighthouse almost to the beach, I only saw about 4 or 5 surfers and I was really surprised. The waves weren’t really high at all, just really long. It is so gorgeous out there. We cruise through the boardwalk, they’re taking advantage of the nice weather and redoing a lot. I stopped again to see the view. My chair is starting to get really loud and I’m afraid I’m going to get stuck somewhere so I didn’t want to go too far, I figured we could just do it again after Robby got some water. Days like this are why I moved over here.
"The reason dogs have so many friends is because they wag their tails instead of their tongues." ~ Unknown
Friday went by really fast. When Susan, the massage therapist, got here I was still sleeping which is awesome. I had a nice long massage and we always have a great talk, some massage therapists don’t like for you to talk because you’re supposed to be concentrating on your breathing and your body but she doesn’t mind. My personal courage and seemed to take very long either, I actually fell asleep and slept really hard. After that my favorite part, a nice long hot bath and then back to bed and dinner. Teresa brought me a really awesome salad and I put some chicken adobo that Heather made in it, man that was good. Cassie came over to visit for a while, it’s always so nice to see her. After that we played cribbage with the regular Friday group. We had cheese, crackers and salami… I love that stuff.
“Everyone needs a dog to adore him, and a cat to bring him back to reality.”
Saturday was a really good day. It started out really frustrating because the visiting nurse was supposed to be here at 10:30 AM and she didn’t get here until almost 11:30 AM, I was supposed to leave at noon so I can get to the support group at 1 PM and we still had to get me in my chair. Everything turned out okay and I was actually there a little bit early. It was really nice to see Roger and Joe, Karen and Terryn didn’t make it, again. We had a really nice chat and we discussed ways that we think we might be able to get a support group going again and keep people interested. We talked about instead of just spinal cord injury making it anybody in a wheelchair, I think that will be awesome. I came home and went to bed happy knowing we were going to give the support of another go and happy Robby got a really nice long cruise. I took a couple of PMs and a Xanax so I know I’ll sleep good.
“Keep in mind...to a dog you're family, to a cat you're staff
Sunday was a pretty kick back day. We got everything done as far as personal care and a nice long hot bath. I watched some TiVo and I watched Mr. Popper’s Penguins, was pretty cute.
Sunday, January 22, 2012
Really really tired of staying in bed…
Monday was a good day, any day I get up out of bed is a good day. The technician from Hill-Rom said that he would come out and disarm the annoying noise my bed makes when you take off the brake, it was a high pitch squealing noise… we said it’s mostly for the hospitals. He said he was going to come out in the afternoon so I was kind of waiting for him. Heather told me I should give him a call and I’m glad I did, he said he would be out about 3:30 PM so I had time to take Robby to the wharf and back before my caregiver came in at 2 PM, unfortunately I waited until about 12:30 PM to call him. I’m glad I got it done. Went to bed and now I’m just relaxing and watching Dr. Phil.
Tuesday was another day spent in bed. Of course the personal care took a lot longer than we wanted but I did get a nice long hot bath. It’s kind of a bummer when one caregiver leaves and the other one comes in and in our, it doesn’t give me much time to myself. Sometimes I think that the reason I don’t sleep at night is because I know that I will have all night and all morning to myself. For some reason I sleep really good about an hour or 2 before my morning caregiver comes in. I got my portable mattress today and the guys showed me how to set it up, it’s going to be perfect. It came in a box but I found a duffel bag online but it will fit into perfectly for only $20. It will be a good bag to carry and store it in. I saw on the news that James Durbin did a secret concert somewhere here in Santa Cruz, I think they only gave tickets away on a radio station. Robby sister belongs to James Durbin’s cousin’s best friend, small world? She asked me if I wanted an autograph CD, that would be awesome.
Wednesday Daniel from ATG rehab came by to give my chair the once over so I can make sure it will be okay for my road trip. I went down to the Metro bus station and they gave me these really long, REALLY yellow tie down straps to put on my chair but they are way too long. Daniel said they have a tiedown kits that will work better and won’t be an eyesore so he ordered those for me along with a new cushion cover for my seat cushion, it’s getting really ripped up little. I thought the bearings were going out in my back wheels again and it seemed to be pulling towards the right… the bad news is I need a new motor for my chair, I know that’s not going to be cheap but hopefully we will be able to get it ordered and install it before my trip, I’m glad I didn’t wait any longer to call. Everything is coming together and it’s just going to be a matter of starting to pack February 1st and I will be ready to go by the time we leave February 18th. I’m sure we will forget a few things but that’s the way it always goes. I even found, well Karen found them, a couple of apps that go on my phone to find a good place to eat and a good motel were ever were going to stop… that should come in handy.
Thursday was a little bit warmer than it has been so Robby and I took advantage of It and went for a long cruise. We went through the lagoon, down to the end of the wharf and back and through the boardwalk and back. I wanted to cruise along the river but I was afraid to with the motor going out in my chair, definitely not the best place to be stranded. I came back and Gabe came over to show me and the girls how to use the lift on the Van manually in case it breaks again or all the power goes out. Karen was smart enough to think of videotaping it, I’m so glad she did, and we put it on YouTube in case we need to access it while were on a road trip. I found the name of the guy in Watsonville that works on the kind of lift that I have and I talked to him a little bit but didn’t really understand a lot so Gabe is going to talk to him tomorrow, I’m so thankful for Gabe. Teresa put me to bed and I was so glad because it is FREEZING out there. I watched a couple of episodes of Dr. Phil and fell asleep.
Friday of coarse was my massage, personal care and a nice long hot bath. The gang came over to play cribbage and I lost 5 bucks, I’ll get them next time. Robby was acting really funny all day and when my uncle came to get the cribbage table set up Robby through up all over the floor and just acted like he kept wanting to go outside but didn’t really do anything. Before everybody left he looked like he was feeling better so if he’s not better in the morning I guess I will take him to the vet, thank God they are open on Saturday. After everybody left I started feeling really bloated, having spasms and sweating… thank God I was not getting that headache. I waited for a while to see if it would go away but it just got worse. By this time I was almost in panic mode and it was about 2 AM so I had to call my mom. We checked the bladder tube and it seemed to be okay so the next step is to check the bowels, as I figured there was a bunch of gas and then I immediately felt better. By the time 4:30 AM came around we were finished and now I get to translate until Teresa gets here at 7… man I hope she’s late. I did take a Xanax so at least I felt really relaxed now.
Saturday of course it was almost impossible to wake up. Teresa came in at 7 AM and I had some coffee but even that didn’t help. She changed my SP tube and checked my bowels but everything seemed to be okay, after a while the chills, the sweats and the spasms stopped. Needless to say I didn’t get out but I slept pretty good all day and hopefully I will be able to sleep through the night. I figured after yesterday both Robby and I could use a day of rest. I’m having a real problem with my Bose surround sound system, every once in a while it just shuts off and I have to wait for somebody to come down and turn it off and on several times to get the sound back. I woke up at 1:00 AM because my phone was ringing, I could see that it was my friend Jerry but I wasn’t really awake enough to answer the phone. I was a little worried but I listen to the message and she sounded like everything was okay.
Sunday was another long personal-care day. I think my body is becoming lactose intolerant. Heather made some mahi tuna and it was so good that I ate it all, that was Friday and probably why I was so bloated… Karen told me this morning that there was cheese on it and I didn’t take my pill. Hopefully I will never forget to do that again. Not only do I need to get up and out of this bed but Robby needs a nice good run, we will do a marathon tomorrow rain or shine. Luckily the days have been going by fast and I’ve been sleeping pretty good during the night’s. I got an e-mail from Roger yesterday wanting to have a meeting next Saturday to try to figure out how we can attract more people to the support group, I am so excited… I hope we can do it.
Tuesday was another day spent in bed. Of course the personal care took a lot longer than we wanted but I did get a nice long hot bath. It’s kind of a bummer when one caregiver leaves and the other one comes in and in our, it doesn’t give me much time to myself. Sometimes I think that the reason I don’t sleep at night is because I know that I will have all night and all morning to myself. For some reason I sleep really good about an hour or 2 before my morning caregiver comes in. I got my portable mattress today and the guys showed me how to set it up, it’s going to be perfect. It came in a box but I found a duffel bag online but it will fit into perfectly for only $20. It will be a good bag to carry and store it in. I saw on the news that James Durbin did a secret concert somewhere here in Santa Cruz, I think they only gave tickets away on a radio station. Robby sister belongs to James Durbin’s cousin’s best friend, small world? She asked me if I wanted an autograph CD, that would be awesome.
Wednesday Daniel from ATG rehab came by to give my chair the once over so I can make sure it will be okay for my road trip. I went down to the Metro bus station and they gave me these really long, REALLY yellow tie down straps to put on my chair but they are way too long. Daniel said they have a tiedown kits that will work better and won’t be an eyesore so he ordered those for me along with a new cushion cover for my seat cushion, it’s getting really ripped up little. I thought the bearings were going out in my back wheels again and it seemed to be pulling towards the right… the bad news is I need a new motor for my chair, I know that’s not going to be cheap but hopefully we will be able to get it ordered and install it before my trip, I’m glad I didn’t wait any longer to call. Everything is coming together and it’s just going to be a matter of starting to pack February 1st and I will be ready to go by the time we leave February 18th. I’m sure we will forget a few things but that’s the way it always goes. I even found, well Karen found them, a couple of apps that go on my phone to find a good place to eat and a good motel were ever were going to stop… that should come in handy.
Thursday was a little bit warmer than it has been so Robby and I took advantage of It and went for a long cruise. We went through the lagoon, down to the end of the wharf and back and through the boardwalk and back. I wanted to cruise along the river but I was afraid to with the motor going out in my chair, definitely not the best place to be stranded. I came back and Gabe came over to show me and the girls how to use the lift on the Van manually in case it breaks again or all the power goes out. Karen was smart enough to think of videotaping it, I’m so glad she did, and we put it on YouTube in case we need to access it while were on a road trip. I found the name of the guy in Watsonville that works on the kind of lift that I have and I talked to him a little bit but didn’t really understand a lot so Gabe is going to talk to him tomorrow, I’m so thankful for Gabe. Teresa put me to bed and I was so glad because it is FREEZING out there. I watched a couple of episodes of Dr. Phil and fell asleep.
Friday of coarse was my massage, personal care and a nice long hot bath. The gang came over to play cribbage and I lost 5 bucks, I’ll get them next time. Robby was acting really funny all day and when my uncle came to get the cribbage table set up Robby through up all over the floor and just acted like he kept wanting to go outside but didn’t really do anything. Before everybody left he looked like he was feeling better so if he’s not better in the morning I guess I will take him to the vet, thank God they are open on Saturday. After everybody left I started feeling really bloated, having spasms and sweating… thank God I was not getting that headache. I waited for a while to see if it would go away but it just got worse. By this time I was almost in panic mode and it was about 2 AM so I had to call my mom. We checked the bladder tube and it seemed to be okay so the next step is to check the bowels, as I figured there was a bunch of gas and then I immediately felt better. By the time 4:30 AM came around we were finished and now I get to translate until Teresa gets here at 7… man I hope she’s late. I did take a Xanax so at least I felt really relaxed now.
Saturday of course it was almost impossible to wake up. Teresa came in at 7 AM and I had some coffee but even that didn’t help. She changed my SP tube and checked my bowels but everything seemed to be okay, after a while the chills, the sweats and the spasms stopped. Needless to say I didn’t get out but I slept pretty good all day and hopefully I will be able to sleep through the night. I figured after yesterday both Robby and I could use a day of rest. I’m having a real problem with my Bose surround sound system, every once in a while it just shuts off and I have to wait for somebody to come down and turn it off and on several times to get the sound back. I woke up at 1:00 AM because my phone was ringing, I could see that it was my friend Jerry but I wasn’t really awake enough to answer the phone. I was a little worried but I listen to the message and she sounded like everything was okay.
Sunday was another long personal-care day. I think my body is becoming lactose intolerant. Heather made some mahi tuna and it was so good that I ate it all, that was Friday and probably why I was so bloated… Karen told me this morning that there was cheese on it and I didn’t take my pill. Hopefully I will never forget to do that again. Not only do I need to get up and out of this bed but Robby needs a nice good run, we will do a marathon tomorrow rain or shine. Luckily the days have been going by fast and I’ve been sleeping pretty good during the night’s. I got an e-mail from Roger yesterday wanting to have a meeting next Saturday to try to figure out how we can attract more people to the support group, I am so excited… I hope we can do it.
Sunday, January 15, 2012
Getting back to the old routine…
Monday…yay…I was up by 10 AM and out of here cruising around with Robby, it sure felt good. We went through the lagoon, down to the end of the wharf and back, through the boardwalk, Down alongside the river and back in through the Boardwalk again… all of which were totally deserted and it was awesome. I came back and my uncle was outside talking to Otis, the guy who takes care of my yard. I did my exercises and went to bed, it was a really great day.
Tuesday almost turned into another day in bed but I’m glad it didn’t. It was colder than it was yesterday but still nice, I can’t believe it’s winter. Robby and I went for a long cruise, I love cruising around when everything is basically deserted. I came back and Teresa put me to bed and then went and got some food at wing stop, we are still trying to use up our groupons… I think we only have 3 family meals left. My aunt came over with her 2 granddaughters Luana and Melia. They were both dressed like little princesses and they look so adorable. Melia wants to be a doctor so she can fix aunt Tammie, how cute is that?
That is not sure what she wants to be yet, they are 2 and 4 years old and just as cute as can be.
Wednesday was a great day, any day out of bed is a great day. I got a kind of early to take Robby on extra long cruise. As we got down to Cowell beach there was a guy by the water stretching with his paddle, it looked like he was going to go paddle boarding. I have on a thermal shirt, another longsleeve shirt and a poncho, this guy had on long shorts, a T-shirt and tennis shoes… I understand the water was about 54°. I followed him along the wharf and I saw him go around and she disappeared out to see, what fun and freedom that must be a thought. Cruising along the river is getting a little scary because there’s a lot of homeless people that don’t have their dogs on leash, I never know what’s going to happen… usually they see me or hear Robby’s tags and grabbed their dog before we get to them. I cruised back home and Teresa and Karen were putting away the last of the, almost the last of the, Christmas decorations and straightening out the garage. While we were at the Boardwalk we practiced a couple of commands and Robby did awesome, he’s such a good boy. We practice a couple when we got home but he got really scared when his vest got caught on the knob of the drawer so we decided to take a break.
Thursday I got up and took Robby for an extra long cruise. I met Theresa and Karen at the post office and they took me to Costco, I love going to Costco. I think we got enough supplies to last about a month. We got back and they got me out of the van and they couldn’t get the lift back up to stow, they couldn’t even get it to manually go up so we called my uncle who had just left to go to Costco. He didn’t know what to do so we called Gabe, he used to work on the Metro buses and they have the same left as I do. He came over in the morning and fixed it, it was a fuse that blew out because we try too many times to stow it from the down position… it always worked before but now we have to learn how to do it differently. He’s going to come over when all of the caregivers are here to show them how to do it. I don’t know what I would do without Gabe.
Friday is always a good day. I get to sleep in until 8:30 AM, hour and a half massage… personal care is not so fun and I end up with a nice long hot bath, about always makes you feel great. Then we play cribbage and win or lose we always have fun, tonight I lost.
“It’s all nonsense to say that you can’t love a dog as much as you love a human.” quote by Richard Dawkins
Saturday was a perfect day. The weather was really nice and Robby and I got to go on a really long cruise. Everything was really crowded, not like during the week. I ran into one of my therapist when I used to go to transitions in Gilroy. I went to her wedding reception at the coconut Grove, it must’ve been about 5 or 6 years ago because now they have an adorable little daughter. It was really nice to see them and since they live here hopefully I will see them again.
Sunday I looked at the weather and it was going to be really cold so I just decided to stay in bed and enjoy the day. I got to watch a couple of movies that I have been meaning to watch, crazy, stupid love and limitless… both really good movies. Heather came over to visit a couple of times, I really don’t see her that much anymore but hopefully that will change.
Tuesday almost turned into another day in bed but I’m glad it didn’t. It was colder than it was yesterday but still nice, I can’t believe it’s winter. Robby and I went for a long cruise, I love cruising around when everything is basically deserted. I came back and Teresa put me to bed and then went and got some food at wing stop, we are still trying to use up our groupons… I think we only have 3 family meals left. My aunt came over with her 2 granddaughters Luana and Melia. They were both dressed like little princesses and they look so adorable. Melia wants to be a doctor so she can fix aunt Tammie, how cute is that?
That is not sure what she wants to be yet, they are 2 and 4 years old and just as cute as can be.
Wednesday was a great day, any day out of bed is a great day. I got a kind of early to take Robby on extra long cruise. As we got down to Cowell beach there was a guy by the water stretching with his paddle, it looked like he was going to go paddle boarding. I have on a thermal shirt, another longsleeve shirt and a poncho, this guy had on long shorts, a T-shirt and tennis shoes… I understand the water was about 54°. I followed him along the wharf and I saw him go around and she disappeared out to see, what fun and freedom that must be a thought. Cruising along the river is getting a little scary because there’s a lot of homeless people that don’t have their dogs on leash, I never know what’s going to happen… usually they see me or hear Robby’s tags and grabbed their dog before we get to them. I cruised back home and Teresa and Karen were putting away the last of the, almost the last of the, Christmas decorations and straightening out the garage. While we were at the Boardwalk we practiced a couple of commands and Robby did awesome, he’s such a good boy. We practice a couple when we got home but he got really scared when his vest got caught on the knob of the drawer so we decided to take a break.
Thursday I got up and took Robby for an extra long cruise. I met Theresa and Karen at the post office and they took me to Costco, I love going to Costco. I think we got enough supplies to last about a month. We got back and they got me out of the van and they couldn’t get the lift back up to stow, they couldn’t even get it to manually go up so we called my uncle who had just left to go to Costco. He didn’t know what to do so we called Gabe, he used to work on the Metro buses and they have the same left as I do. He came over in the morning and fixed it, it was a fuse that blew out because we try too many times to stow it from the down position… it always worked before but now we have to learn how to do it differently. He’s going to come over when all of the caregivers are here to show them how to do it. I don’t know what I would do without Gabe.
Friday is always a good day. I get to sleep in until 8:30 AM, hour and a half massage… personal care is not so fun and I end up with a nice long hot bath, about always makes you feel great. Then we play cribbage and win or lose we always have fun, tonight I lost.
“It’s all nonsense to say that you can’t love a dog as much as you love a human.” quote by Richard Dawkins
Saturday was a perfect day. The weather was really nice and Robby and I got to go on a really long cruise. Everything was really crowded, not like during the week. I ran into one of my therapist when I used to go to transitions in Gilroy. I went to her wedding reception at the coconut Grove, it must’ve been about 5 or 6 years ago because now they have an adorable little daughter. It was really nice to see them and since they live here hopefully I will see them again.
Sunday I looked at the weather and it was going to be really cold so I just decided to stay in bed and enjoy the day. I got to watch a couple of movies that I have been meaning to watch, crazy, stupid love and limitless… both really good movies. Heather came over to visit a couple of times, I really don’t see her that much anymore but hopefully that will change.
Monday, January 9, 2012
Trying to catch up after the holidays…
Wow, I haven’t written in my blog for a couple of weeks. The holidays always bring lots of family and friends. My Modesto family came down for Christmas and it was so nice. My niece stayed here with us for a week, I’d love to go to lunch and hang out with her. Phil started doing the work on my porch, he’s putting in the sink, a counter and some shelves… it looks AWESOME and really blends in nicely with the railing and my Burrel table.
"It came to me that every time I lose a dog they take a piece of my heart with them. And every new dog who comes into my life gifts me with a piece of their heart. If I live long enough, all the components of my heart will be dog, and I will become as generous and loving as they are."--Unknown
Tuesday was Robbys bath day and my day to see Claudia, actually it was Samantha, to get a manicure and pedicure. After I came back home and picked up Robby we went for a long cruise and then came back and Teresa put me to bed.
Wednesday the Los Gatos Lions invited us to their lunch/meeting so they could see Robby’s progress. We visit them once a year but I wish it could be more because they are awesome people, I wish I could join the Lions Club. Since we were over the hill there was a lot that we wanted to do but mostly it turned out to be errands. We found a Home Depot, which really wasn’t that much bigger than the one we have here. On the way home we stopped in Scotts Valley at Dawgs and got some hot dogs, I had two Groupons that were going to expire at the end of this month. I decided to get the Italian one with mozzarella cheese and marinara sauce, why didn’t I just get a plain hotdog?? We also got fried pickles and their homemade potato chips which really aren’t that great, the potato chips that is.
Thursday my aunt and I went to the movies to see War horse, it was a really good movie. I cruised home with my aunt and then went back downtown to meet Teresa at the post office to send my brother and asked her bed control so he can rig my bed so I can control it from the computer and I sent back a couple of electric throws that I ordered that were the wrong ones, actually the ones I like they don’t make anymore… figures. I met her back here and she took down most of the Christmas decorations, it always looks so bare in my living room without all the decorations. Heather came over and cooked a bunch of amazing smelling food, I can’t wait to dig into it.
Friday is always a great day. It starts off with a massage, personal care, a nice long hot bath, back to bed to relax for a while and then a game of cribbage with family and friends. Tonight we had 84 bean soup, whatever it’s called… it was really good. I usually lay out $5, I lost all but one and then won it all back… it was a great evening.
Saturday was such a nice and relaxing day. I laid on my side, I think I stayed up too long on Wednesday and Thursday. I slept most of the day, it was so relaxing and nice. I watch the hangover part 2 and it was okay but it really didn’t make me laugh out loud or anything. I downloaded about 4 movies last night so if I can’t sleep tonight I will just watch movies. Jess took Robby and I don’t know what they did but he’s sleeping peacefully, except for the occasional squeals and twitches… I always wonder if he’s having a bad dream or a good dream, I hope it’s a good one.
Sunday I really didn’t plan on staying in bed but it couldn’t be helped, sometimes my morning care just takes too long. It was so beautiful outside. Tomorrow I am out of here!
Thursday, December 15, 2011
Forgot to post for a while...
Monday was hopefully the last day I have to stay in bed. The visiting nurse didn’t come until 1 o’clock and Daniel was coming to fix my chair at 3:30 PM, he is always early. The nurse said everything looked really good and I think they’re getting ready to release me… yay finally! I was hoping that I would be able to get up by Thanksgiving and it’s going to come true. Kelly and I picked a date for our road trip from here to Florida, where her and Tom live, and back. She is going to get here on Wednesday, February 15 and we’re going to leave on Saturday the 18th, I am so excited and I think were going to have a lot of fun. Karen agreed to come with us so we don’t have to find a caregiver in every state that we stop. Heather came over and made a bunch of food for me yesterday, it smelled so good I wanted to eat it all right then. She brought over this savory mushroom bread pudding from work that was AWESOME!
"My sunshine doesn't come from the skies, it comes from the love in my dog's eyes." ~ unknown
Tuesday I kept trying to decide if I want to do all of my personal care and take a bath today or tomorrow. Luckily I picked today because tomorrow they are FINALLY going to come and replace my mattress with the new one, I ordered the 7th of last month and they told me it would take 3 to 5 days… isn’t that the way it usually goes? Anyways it will be nice to get up tomorrow and take Robbie for a really long needed cruise. It’s going to be cold but we will just have to find a way to do it.
“Women and cats will do as they please, and men and Dogs should relax and get used to the idea.” ~ Robert Heinlein
Wednesday I finally got to get up and it felt great. I thought it was going to be cold but it was actually pretty warm. Robby and I cruised through the lagoon and to the end of the wharf and back twice. We came back and Teresa waxed my face and then put me to bed.
Thursday was Thanksgiving and all I could think about all day was stuffing and mashed potatoes. I got up just in time to cruise over to my uncles house for dinner, unfortunately I didn’t get to run Robby and I couldn’t take him with me because my cousin had his dog over there and they have never met before. The food was amazing. The turkey was so moist, the stuffing was awesome, mashed potatoes and gravy were killer, she made spinach with bacon and cheddar cheese and cauliflower with cheddar cheese. They wanted to eat early so they could go to a friends house and watch a football game so Karen and I came back and she put me to bed. She was going to go home but it was getting late, dark and cold so she decided to stay here.
"I think dogs are the most amazing creatures; they give unconditional love. For me they are the role model for being alive." - Gilda Radner
Friday was another day of personal care but I got a nice long hot bath and I feel rested and comfortable. My brother Stanley, his wife and daughter are coming down to spend the weekend so I’m glad I got everything done today. I really need to take Robby out for a nice long cruise.
Saturday Teresa called me at 7 AM say that she wasn’t coming in, she was really dizzy and shouldn’t be doing anything. I ended up just staying in bed and visiting with my family. They went and got me a tree and decorated my house, I can’t wait to get up tomorrow and check it out… I am just love Christmas. It sounds like my Modesto family is going to be here for Christmas, I am so excited. Corinne is going to stay the week after Christmas, it will be awesome to spend some time with her. We ended up playing cribbage for the 2nd night in a row, Janet was my partner both nights and we kick their butts.
Sunday was a great day. I got to get up in the weather outside was gorgeous. I decided to run Robby and meet my sister-in-law at Costco, I need to find a tree topper but we didn’t have any luck there and we needed to get back because they had to leave. I think I’ll try cost plus and while I’m there I might as well look around Ross and see what they have. While I was eating my chicken bake from Costco yesterday another one of my teeth broke. I’m going to try to get a dentist appointment today but it’s not hurting so tomorrow is more likely. I came home and Heather was cooking a bunch of stuff, I haven’t seen her much lately and I really miss her. While I was eating my chicken bake from Cosco I felt something funny in my mouth and sure enough I broke another tooth, they just seem to be breaking like chalk these days. Luckily it was time to go to bed and it wasn’t that noticeable from the outside, I just couldn’t help but play with it all night long.
Monday 1st thing I made an appointment for Tuesday at the dentist, luckily they know me and my brittle teeth so they got me in right away. I decided to get all my personal care and bath done on Monday so I would be ready to go on Tuesday. It was a nice relaxing day in bed.
Tuesday Karen got me up really quick. I actually had time to make a couple of phone calls before I had to leave for the dentist. The weather turned out to be just beautiful so Robby and I cruised down to the dentist office. We had to pass by the occupy Santa Cruz campsites and it was a little embarrassing. I got to the dentist and she cleaned my teeth and took x-rays. The doctor looked at my tooth and told me I would have to come back the next day to get the tooth fixed so Robby and I cruised back. I got home and the housekeeper still did not clean my room or my bathroom but I had to get to bed so Karen can go home. Teresa called in sick to Karen was waiting for me so she could put me to bed and go home. The housekeepers tried to knock on my door to say they were ready to clean my room and I guess I just snapped and said we’re going to have to miss my room again and this was their last day cleaning my house. The schedule is just not right and I keep having to get my room skipped plus I have everything meticulously placed in my room so it is where I need it when I need it and my caregivers know where that is so I’m just going to have them cleaned my house. I went to bed and my uncle brought over some split pea soup, he’s upstairs right now doctoring it up with my mom but I’m waiting patiently.
Wednesday I got up and went through my Christmas decorations and lights and got some stuff together for my cousin and his family. I was glad to get rid of a lot of stuff that I got rid of, I would have gotten rid of it before but it was easier to get rid of knowing it was going to my cousin… I hate getting rid of my stuff. I went back to the dentist to get my tooth that broke replaced and when I got back I had a house full of people decorating, I just love Christmas.
Thursday I ended up staying in bed all day, mostly on my side. I just got my new mattress about a week before but my pressure sore turned into a deep tissue wound, that’s what the visiting nurse called it. She came over here ready to release me and when she felt my new mattress she said it was no better than the old one so she was on the phone all night and got it set up so that they were going to bring me a mattress that will work for me. This is getting to be ridiculous.
Friday Karen got me up by 10 o’clock when the hill-rom technician got here. He said that the new mattress, the one he had installed a week ago, is bottoming out where my bottom is an recommended I get a different kind of mattress. Unfortunately the one that I need they don’t sell anymore, it’s only for the rentals. It looks like I’m buying all whole new bed that will come with the right mattress, the sales guy promised me several times I would not bottom out on this new mattress in this new frame. It also has a scale so I can weigh myself, I have always wanted that option. Hopefully I can pick a weight that I like for me and by being weighed every day I can keep it at that. I met Theresa and her classmates at the red room for appetizers, what a neat group of people. I met one of them before because he works there at the red room and I met another one that came to help Teresa clean my house one time. I came home and Lee and Claudia, my uncle and aunt and my mom and I played a couple games of cribbage… I lost a dollar.
Saturday was a great day of shopping and eating. I had some groupuns that were about to expire. Teresa came in the morning and got me up and I took Robby for a run on our usual route and then met Teresa at cost plus. We found some more ornaments for my tree and some hats, scarves and slipper boots. I cruised Robby back through town and we met at this Indian restaurant, I’m so glad we went there because the food was awesome. We went to American apparel, urban outfitters and a couple of other places and it was getting really close to Robby’s dinnertime so we decided to use our last groupon and go home. The last place was also downtown and it was kind of an appetizer/drink place. We were really hungry but we ordered a bacon hamburger and fries and it was excellent. While we were sitting there our neighbors, Alex and Aki came by and saw us in the window and decided to join us. I don’t think they cooked the hamburgers there because the guy that brought them came from behind me and I had my back to the exit, I didn’t realize that until after when Teresa brought it up. I’m going to have to go back and figure out where they could have come from. Both places that we ate at will definitely be going back to.
Sunday was another personal care day although we didn’t get very good results I ended up staying in bed. My pressure sore turned into a deep tissue wound but was looking much better with this new mattress. I did get a nice long hot bath and went back to bed, that always feels great.
Monday we decided to try the personal care again since we didn’t have any results on Sunday, it turned out to be a good day. Heather came over and cooked a bunch of wonderful stuff, it smelled so awesome and here.
The boss isn’t always right but she’s always the boss!
Tuesday I took Robbie for a really long cruise through the lagoon, down to the end of the wharf and back and we started down towards the boardwalk but it was just too cold so we came back home. We practiced a few commands and then when Teresa got here we went to the Indian restaurant again, that place is awesome. Teresa had garlic pasta with artichokes and shrimp and I had pomegranate egg plant with rice that was cooked perfectly and greens. After that we went over to the shoe and sock place and got my mom some ankle socks for Christmas… I hope you’re not reading this mom.
Gossip is when you hear something you like about someone you don’t !?!
Wednesday Teresa and I went shopping at the world market to look for a tree topper, we didn’t find one but we found a lot of other cool stuff and isn’t that what shopping is all about?
Thursday I ended up waiting for the visiting nurse so I didn’t get up.
Friday was miserable. I was miserable all Thursday night and woke up Friday with a really bad headache every time I had a spasm. I pretty much lived on PMs most of the day.
Saturday I went to see the frog and toad on the UCSC campus with my aunt, my cousins girl Alexia and her friend. It was really warm and I was having an anxiety attack but the play was awesome.
Sunday Robby and I cruised around for a while but it was really cold so we had to come back and warm-up every once in a while. Teresa and I had some awesome Chinese food and watched a movie called the help, 2nd time I had seen it.
Monday was also really cold but we cruised around anyway. When it was too cold to cruise around anymore we came back and waited for Karen to finish cleaning the house so I could go to bed. We ordered pizza, Buffalo wings and garlicky bread and watched the movie the help, excellent movie. We then attempted to watch bag of bones but I fell asleep.
Tuesday I went to go get my hair dyed and get a manicure and pedicure, it turned out really nice. As I was cruising down by the boardwalk a couple of young girls walked by and one of them said “is that Robby”? I said yes it was and it seems like everybody knows Robby. She was one of the visiting nurses daughters and has seen pictures of Robby on Facebook.
Wednesday after we did the personal care the nurse called and said that she would be here at 2:30 PM, not much point in getting out and I would not have had anybody to put me down that early so another day in bed, at least I got a nice hot bath.
"My sunshine doesn't come from the skies, it comes from the love in my dog's eyes." ~ unknown
Tuesday I kept trying to decide if I want to do all of my personal care and take a bath today or tomorrow. Luckily I picked today because tomorrow they are FINALLY going to come and replace my mattress with the new one, I ordered the 7th of last month and they told me it would take 3 to 5 days… isn’t that the way it usually goes? Anyways it will be nice to get up tomorrow and take Robbie for a really long needed cruise. It’s going to be cold but we will just have to find a way to do it.
“Women and cats will do as they please, and men and Dogs should relax and get used to the idea.” ~ Robert Heinlein
Wednesday I finally got to get up and it felt great. I thought it was going to be cold but it was actually pretty warm. Robby and I cruised through the lagoon and to the end of the wharf and back twice. We came back and Teresa waxed my face and then put me to bed.
Thursday was Thanksgiving and all I could think about all day was stuffing and mashed potatoes. I got up just in time to cruise over to my uncles house for dinner, unfortunately I didn’t get to run Robby and I couldn’t take him with me because my cousin had his dog over there and they have never met before. The food was amazing. The turkey was so moist, the stuffing was awesome, mashed potatoes and gravy were killer, she made spinach with bacon and cheddar cheese and cauliflower with cheddar cheese. They wanted to eat early so they could go to a friends house and watch a football game so Karen and I came back and she put me to bed. She was going to go home but it was getting late, dark and cold so she decided to stay here.
"I think dogs are the most amazing creatures; they give unconditional love. For me they are the role model for being alive." - Gilda Radner
Friday was another day of personal care but I got a nice long hot bath and I feel rested and comfortable. My brother Stanley, his wife and daughter are coming down to spend the weekend so I’m glad I got everything done today. I really need to take Robby out for a nice long cruise.
Saturday Teresa called me at 7 AM say that she wasn’t coming in, she was really dizzy and shouldn’t be doing anything. I ended up just staying in bed and visiting with my family. They went and got me a tree and decorated my house, I can’t wait to get up tomorrow and check it out… I am just love Christmas. It sounds like my Modesto family is going to be here for Christmas, I am so excited. Corinne is going to stay the week after Christmas, it will be awesome to spend some time with her. We ended up playing cribbage for the 2nd night in a row, Janet was my partner both nights and we kick their butts.
Sunday was a great day. I got to get up in the weather outside was gorgeous. I decided to run Robby and meet my sister-in-law at Costco, I need to find a tree topper but we didn’t have any luck there and we needed to get back because they had to leave. I think I’ll try cost plus and while I’m there I might as well look around Ross and see what they have. While I was eating my chicken bake from Costco yesterday another one of my teeth broke. I’m going to try to get a dentist appointment today but it’s not hurting so tomorrow is more likely. I came home and Heather was cooking a bunch of stuff, I haven’t seen her much lately and I really miss her. While I was eating my chicken bake from Cosco I felt something funny in my mouth and sure enough I broke another tooth, they just seem to be breaking like chalk these days. Luckily it was time to go to bed and it wasn’t that noticeable from the outside, I just couldn’t help but play with it all night long.
Monday 1st thing I made an appointment for Tuesday at the dentist, luckily they know me and my brittle teeth so they got me in right away. I decided to get all my personal care and bath done on Monday so I would be ready to go on Tuesday. It was a nice relaxing day in bed.
Tuesday Karen got me up really quick. I actually had time to make a couple of phone calls before I had to leave for the dentist. The weather turned out to be just beautiful so Robby and I cruised down to the dentist office. We had to pass by the occupy Santa Cruz campsites and it was a little embarrassing. I got to the dentist and she cleaned my teeth and took x-rays. The doctor looked at my tooth and told me I would have to come back the next day to get the tooth fixed so Robby and I cruised back. I got home and the housekeeper still did not clean my room or my bathroom but I had to get to bed so Karen can go home. Teresa called in sick to Karen was waiting for me so she could put me to bed and go home. The housekeepers tried to knock on my door to say they were ready to clean my room and I guess I just snapped and said we’re going to have to miss my room again and this was their last day cleaning my house. The schedule is just not right and I keep having to get my room skipped plus I have everything meticulously placed in my room so it is where I need it when I need it and my caregivers know where that is so I’m just going to have them cleaned my house. I went to bed and my uncle brought over some split pea soup, he’s upstairs right now doctoring it up with my mom but I’m waiting patiently.
Wednesday I got up and went through my Christmas decorations and lights and got some stuff together for my cousin and his family. I was glad to get rid of a lot of stuff that I got rid of, I would have gotten rid of it before but it was easier to get rid of knowing it was going to my cousin… I hate getting rid of my stuff. I went back to the dentist to get my tooth that broke replaced and when I got back I had a house full of people decorating, I just love Christmas.
Thursday I ended up staying in bed all day, mostly on my side. I just got my new mattress about a week before but my pressure sore turned into a deep tissue wound, that’s what the visiting nurse called it. She came over here ready to release me and when she felt my new mattress she said it was no better than the old one so she was on the phone all night and got it set up so that they were going to bring me a mattress that will work for me. This is getting to be ridiculous.
Friday Karen got me up by 10 o’clock when the hill-rom technician got here. He said that the new mattress, the one he had installed a week ago, is bottoming out where my bottom is an recommended I get a different kind of mattress. Unfortunately the one that I need they don’t sell anymore, it’s only for the rentals. It looks like I’m buying all whole new bed that will come with the right mattress, the sales guy promised me several times I would not bottom out on this new mattress in this new frame. It also has a scale so I can weigh myself, I have always wanted that option. Hopefully I can pick a weight that I like for me and by being weighed every day I can keep it at that. I met Theresa and her classmates at the red room for appetizers, what a neat group of people. I met one of them before because he works there at the red room and I met another one that came to help Teresa clean my house one time. I came home and Lee and Claudia, my uncle and aunt and my mom and I played a couple games of cribbage… I lost a dollar.
Saturday was a great day of shopping and eating. I had some groupuns that were about to expire. Teresa came in the morning and got me up and I took Robby for a run on our usual route and then met Teresa at cost plus. We found some more ornaments for my tree and some hats, scarves and slipper boots. I cruised Robby back through town and we met at this Indian restaurant, I’m so glad we went there because the food was awesome. We went to American apparel, urban outfitters and a couple of other places and it was getting really close to Robby’s dinnertime so we decided to use our last groupon and go home. The last place was also downtown and it was kind of an appetizer/drink place. We were really hungry but we ordered a bacon hamburger and fries and it was excellent. While we were sitting there our neighbors, Alex and Aki came by and saw us in the window and decided to join us. I don’t think they cooked the hamburgers there because the guy that brought them came from behind me and I had my back to the exit, I didn’t realize that until after when Teresa brought it up. I’m going to have to go back and figure out where they could have come from. Both places that we ate at will definitely be going back to.
Sunday was another personal care day although we didn’t get very good results I ended up staying in bed. My pressure sore turned into a deep tissue wound but was looking much better with this new mattress. I did get a nice long hot bath and went back to bed, that always feels great.
Monday we decided to try the personal care again since we didn’t have any results on Sunday, it turned out to be a good day. Heather came over and cooked a bunch of wonderful stuff, it smelled so awesome and here.
The boss isn’t always right but she’s always the boss!
Tuesday I took Robbie for a really long cruise through the lagoon, down to the end of the wharf and back and we started down towards the boardwalk but it was just too cold so we came back home. We practiced a few commands and then when Teresa got here we went to the Indian restaurant again, that place is awesome. Teresa had garlic pasta with artichokes and shrimp and I had pomegranate egg plant with rice that was cooked perfectly and greens. After that we went over to the shoe and sock place and got my mom some ankle socks for Christmas… I hope you’re not reading this mom.
Gossip is when you hear something you like about someone you don’t !?!
Wednesday Teresa and I went shopping at the world market to look for a tree topper, we didn’t find one but we found a lot of other cool stuff and isn’t that what shopping is all about?
Thursday I ended up waiting for the visiting nurse so I didn’t get up.
Friday was miserable. I was miserable all Thursday night and woke up Friday with a really bad headache every time I had a spasm. I pretty much lived on PMs most of the day.
Saturday I went to see the frog and toad on the UCSC campus with my aunt, my cousins girl Alexia and her friend. It was really warm and I was having an anxiety attack but the play was awesome.
Sunday Robby and I cruised around for a while but it was really cold so we had to come back and warm-up every once in a while. Teresa and I had some awesome Chinese food and watched a movie called the help, 2nd time I had seen it.
Monday was also really cold but we cruised around anyway. When it was too cold to cruise around anymore we came back and waited for Karen to finish cleaning the house so I could go to bed. We ordered pizza, Buffalo wings and garlicky bread and watched the movie the help, excellent movie. We then attempted to watch bag of bones but I fell asleep.
Tuesday I went to go get my hair dyed and get a manicure and pedicure, it turned out really nice. As I was cruising down by the boardwalk a couple of young girls walked by and one of them said “is that Robby”? I said yes it was and it seems like everybody knows Robby. She was one of the visiting nurses daughters and has seen pictures of Robby on Facebook.
Wednesday after we did the personal care the nurse called and said that she would be here at 2:30 PM, not much point in getting out and I would not have had anybody to put me down that early so another day in bed, at least I got a nice hot bath.
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